Oh I'm cracking up, reading back over your older entries... realizing how long it's been since I've checked in.The snow plow got stuck on your street?! Now that's a memory!We had a white Christmas too... a bit north of you. Actually had three consecutive weeks of snow. Thank God we have a 4-Runner and could get out occasionally :0)Glad to be back to plain old rain... sort of.
I am SO glad I found your blog! I have two children, both of which have Pendred Syndrome. Abby just turned 3 and Carter is 20 months. Our discovery of Abby's hearing loss is a lot like yours. She passed her newborn screening, but at 14 months we noticed she was quickly falling behind her peers. We put her through unsuccessful speech therapy, she got tubes for "glue ear", we did several "hearing" tests in the booth, (which any smart HOH kid can "pass") and our ENT was anything but helpful. By 17 months she had made little progress and that's when Carter was born. He did NOT pass his newborn screen, and thank goodness, for it may have been even longer before we got Abby the care she needed too.Anyway, we have a fabulous ENT and audiologist now, and they have been wearing their hearing aids since June 08. Both of them are losing their hearing a lot quicker than we were hoping, so we're looking at CI's in the near future. I have been a little hesitant about having a baby #3 because this whole journey has been hard, but if you can do it, so can I!
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